It's been a whirlwind of a month full of doctor appointments for Bob and I both along with more tests for Bob, the final countdown for the baby's arrival with a sprinkling of kid activities thrown in there. Just reading that makes me tired, for sure. I am not sure how we fit it all in but there it is....Life.
We got the results back from Bob's EMG test and everything looks good. This is frustrating and it is awesome news all wrapped up into one neat little white sheet of paper explaining all this from the doctor. We very much want to find out what is going inside Bob's body but at the same time are praying so very hard that it is not something terminal while trying to maintain some kind of hope that it is curable. Since we still haven't any answers and considering Bob's pain level when getting that test done and the result being good, the doctors, who are scratching their heads in disbelief, prescribed a myelogram test.
It is not a fun test to have especially when you are in severe pain constantly. They remove a small amount of your spinal fluid and inject same amount of dye at the base of your spine. Then, while you are laying on this table with handles to hold onto, they tip your head down to let the dye run from the lower spine all the way up. During this process, they take lots and lots of pictures.
In Bob's situation, they injected the dye which decided to just get caught in his lumbar spine and stay there. We now know it's because he's got some bad disks in that area along with some arthritis which makes it more difficult to get the dye past. After repeated attempts of trying to get the dye to move on up the spine, they were somewhat successful but the poor guy was put through the wringer to get this to happen. As he was lying on the table crying, the doctors were trying to decide whether to proceed any further to try to get it up into the C-Spine area which is the neck area. They decided not to.
After they completed the test, Bob had to stay in the hospital for several hours to monitor the spinal area. Spinal fluid loss is just not a good thing. He was released to go home later that day with strict instructions to do absolutely nothing. You do not want the puncture in the spinal area to break open. So for 48 hours, I watched for any signs of leaking and had to become the armed drill sergeant to keep him from trying to do anything.
He didn't do too badly for the first 24 hours except for a bit of a headache which they said was normal. However, by late evening and early morning following that, his head was hurting so excruciatingly bad that I ended up taking him into the ER. Apparently, the fluid can leak into the muscle tissue and not be visible to the eye since it's leaking on the inside which was what was happening to Bob. He had a spinal headache that was making him throw up. They did a procedure called a 'blood patch' which provided relief in just a short period time. After a couple of days, he started up with another headache but not quite as bad this time. This is apparently normal also as your body is trying to rebuild the lost spinal fluid. Definitely, not a fun test to have.
We saw the doctor yesterday regarding the results of the myelogram. It showed that in the lower spine he's got some arthritis and disk herniation along with a couple little spots of spinal narrowing but nothing that should cause him this severe of pain or any of what is going on with Bob. Since every test he has had is coming back mostly fine, the doctor wants to revisit the idea of Fibromyalgia. There is no test that can confirm completely that is what is going on. It is a process of elimination. His symptoms kind of go along with that theory. They have him started on a new medication to see if it helps. So they will be testing that on him for the next few weeks to see if there are any changes.
In the face of that diagnosis, we are dealing with some disappointment because there is no cure. Just as we have for the last three years, we are trying to find a way to function, to live and deal with the debilitating pain that has become such a part of our lives. To come to terms with the fact that was once normal may never be again. To trust God with it all and allow Him to make some kind of good out of it. We have to put our lives, the lives of our children, our hopes and dreams and plans in the hands of God.
It is very difficult to give up what you want and to trust God with it all. My independent spirit wants what I want but God wants us to want what He desires. If we can somehow let go and let God do what He does, this whole situation will turn out amazing and glorifying to Him. It's my own selfishness that gets in the way and prohibits God's plan. So once again, I come before the Lord, giving it all to Him and am desperately trying to leave my hands off it. He has promised us HOPE and a FUTURE. He will restore us maybe not as we envision but as He has envisioned and known before time began.
Jeremiah 29:11 For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.
